Choko’s acknowledgement definitely helped put Dee a little more at ease around the children.
“When I was your age, they still worked. It wasn’t until I was about…” he looked around the table, pointing toward Tia, Heather and Sophia, “about their age… that we started to think something was wrong.”
Something was definitely wrong. Despite the late onset, it was clear from the start that progression was rapid and would become debilitating in young adulthood without treatment. Still, Dee wouldn’t have changed the choices he made. Even if he could go back and do it all again. He really hoped none of the kids ever had to feel that way, though.
“When I first met your teacher, I didn’t have my chair yet… I could still walk around okay enough. I just… got tired a lot. And fell… sometimes… Choir rehearsals, concerts… were really exhausting.”
Said chair was tucked away in the corner for now. He could, and did, still try to walk around without it. At least inside places like this.
“Do you have concerts?” He asked the girls, then glancing to Rekker. “I’d like to come to the next one… hear them sing.”
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regna
(no subject)
Date: 2023-11-04 01:16 pm (UTC)“When I was your age, they still worked. It wasn’t until I was about…” he looked around the table, pointing toward Tia, Heather and Sophia, “about their age… that we started to think something was wrong.”
Something was definitely wrong. Despite the late onset, it was clear from the start that progression was rapid and would become debilitating in young adulthood without treatment. Still, Dee wouldn’t have changed the choices he made. Even if he could go back and do it all again. He really hoped none of the kids ever had to feel that way, though.
“When I first met your teacher, I didn’t have my chair yet… I could still walk around okay enough. I just… got tired a lot. And fell… sometimes… Choir rehearsals, concerts… were really exhausting.”
Said chair was tucked away in the corner for now. He could, and did, still try to walk around without it. At least inside places like this.
“Do you have concerts?” He asked the girls, then glancing to Rekker. “I’d like to come to the next one… hear them sing.”